Being Their Voice

I walked into a gathering of people last night absolutely exhausted. I had the usual “I am fine” smile on my face, with no intention of unloading the hurt I was carrying. Suddenly I was disarmed. “Sharon, how has your week been…REALLY?” I muttered something less than eloquent, when “My daughter hurts herself a lot, and I don’t know what to do” came out of my mouth. I couldn’t take it back, and I immediately felt the panic that so often happens when we veer from fake surface-level social conversations. Then I heard the words I didn’t expect to hear. “Oh yeah, we’ve been there, and are there, too.” 

Read More

Becoming Princesses

On the day we were supposed to be meeting Disney Princesses, my daughters BECAME princesses instead. This is the story of how we decided to face the storm of Hypotonia as a family. For those of you who are new to our story, my name is Sharon Stone. I married my best friend, Richard, at…

Read More

Hospital life and Hypotonia: when the NICU follows you home…

Let me tell you what you are about to read. This is a recap of our story and an update on what is currently happening in our lives. I want to share this with you for two reasons: 1) Some of you just started following our journey, and where we have been affects where we…

Read More